Monday, January 17, 2011
I took Jonathan to an appointment today with an Immunologist in Denver. This doctor was recommended by a family that our new pediatrician has taken care of for years. He has been instrumental in providing the children in that family a life with tremondous relief from chronic sinus infections. I was so pleased with this doctor.
We repeated allergy testing just to see if there was any chance that there were allergies that could be aggravating his situation. The good news that he no longer test positive to any of the allergies ( those must have been some good allergy shots that Dr. P made him in Knoxville!). The next step is to begin the process of testing his immune system. Dr. Voltz believes that he definietly has some thing going on with his immune system. Most of his immune type labs have not been repeated since 2005. The doctor was kind of shocked by this. I am not shocked at all...for the past several years I have just been put off and told to deal with it.
Dealing with it just doesn't work...not when your child is so sick and then becomes so psychiatrically unstable that he is begging you for a knife so he can cut his nose off. Or when the infection has lasted so long that he is not able to hold his head straight, walk steadily or speak without slurring his speech. Its so easy to say "I don't know" or "It's just how it is" when you don't have to live with him or watch him struggle twenty four hours a day!
So...we are drawing blood tomorrow for 17 different labs...ranging from basic CBC and CMP levels to vitamin levels and all the immunology levels. These labs will take about two to three weeks to get back. I am anxious to see what they say. I am hopeful that they will give us new insight on what to do to help Jonathan feel better. Thank you for praying for us so faithfully.
Tuesday, January 11, 2011
This is what I woke up to this morning. This is game we call " To Worry, Not to Worry". We were supposed to have an MRI yesterday but because of the snow we had to cancel it. It will be three weeks before we can get another scan done. A lot can happen in three weeks. The hardest part of this is how much things change sometimes right in front of our eyes. Jon has been struggling since the end of November. About a week ago things started to concern me..mostly his eyes. So finally I emailed the dr and they agreed to do a scan. Of course as soon as I call then he does a turn around and seems ok (but the eyes are still funky). I even took him to the pediatrician who remarked at how he doesn't seem like himself...but no one seems overly concerned. So maybe I am just a crazy mom. Maybe I see too much, maybe I am too particular...so I convince myself nothing is really going on (and really..there probably isn't). I convince myself that its ok that the MRI is three weeks away. I tell myself and my friends that if something is wrong it will still be wrong in 3 weeks and I move on...until I wake up to this this morning. I know that if I showed up at the hospital with Jon looking like this that would not only scan him today they would probably admit him. Problem is that if I actually call and take him in he will be fine by the time I get there and they will pass it off as this is just how it is with hypothalmic injury...
I get the whole hypothalmus issue. Really I do. I know there are up days and down days. I have lived through enough raging to understand how his body doesn't work the way ours does. I have watched as my child has literally turned purple right in front of my eyes and then just as quickly returned to a normal of shade. I get it. But I wish someone could explain to me what to do with the way my heart feels and how to not hold my breath when I wake to this every morning and I know something is wrong and the balancing act begins...
Monday, January 03, 2011
I was listening to songs on New Years day and wondering what song could be a theme song for this new year for me. This song came on and immediately I knew it was the one... the single line " Jesus, keep my heart alive," is my prayer for 2011. That is the desperate plea ringing out from my heart.
The last half of 2010 was rough. Really rough. Rough in ways that I can't share. So many things happened that left me emotionally shaken and questioning everything I thought was true. When you are hurt deeply, its hard to keep your heart alive. Its hard to keep pressing on. It is so much easier to shut down and become numb.
Thankfully, the Lord went before me and prepared the way even in the midst of so much pain. I am so thankful for two people in particular who God gave me during this time when it felt like I was loosing everything and everyone that were important to me. One person has reminded me daily that healthy, mutually edifying relationships can exist...I am so thankful that when many others forgot the song my heart needed to hear that this person sang that song every morning and every night for as long as it took. The other person has become the person to walk through the very deep things that I needed to walk through, lovingly and graciously willing to get messy with me. She wasn't afraid to step into the mud puddle I had found myself in and pull me out. Her words are straight from the word of God and are a never ending challenge to press on and not give up hope.
With 2010 gone and 2011 waiting to be lived... I am choosing to forget what lies behind and press forward...praying as I walk and things getting messy...Jesus, keep my heart alive.
Wednesday, June 16, 2010
Tuesday, June 01, 2010
Tuesday, May 18, 2010
Thursday, May 06, 2010
Saturday, April 17, 2010
Author: Mrs. Charles E. Cowman
Source: Streams in the Desert
Scripture Reference: Job 12:9
Diamond in the Rough
"The hand of the Lord hath wrought this" (Job 12:9).
Several years ago there was found in an African mine the most magnificent diamond in the world's history. It was presented to the King of England to blaze in his crown of state. The King sent it to Amsterdam to be cut. It was put into the hands of an expert lapidary. And what do you suppose he did with it?
He took the gem of priceless value, and cut a notch in it. Then he struck it a hard blow with his instrument, and lo! the superb jewel lay in his hand cleft in twain. What recklessness I what wastefulness! what criminal carelessness!
Not so. For days and weeks that blow had been studied and planned. Drawings and models had been made of the gem. Its quality, its defects, its lines of cleavage had all been studied with minutest care. The man to whom it was committed was one of the most skillful lapidaries in the world.
Do you say that blow was a mistake? Nay. It was the climax of the lapidary's skill. When he struck that blow, he did the one thing which would bring that gem to its most perfect shapeliness, radiance, and jewelled splendor. That blow which seemed to ruin the superb precious stone was, in fact, its perfect redemption. For, from those two halves were wrought the two magnificent gems which the skilled eye of the lapidary saw hidden in the rough, uncut stone as it came from the mine.
So, sometimes, God lets a stinging blow fall upon your life. The blood spurts. The nerves wince. The soul cries out in agony. The blow seems to you an apalling mistake. But it is not, for you are the most priceless jewel in the world to God. And He is the most skilled lapidary in the universe.
Some day you are to blaze in the diadem of the King. As you lie in His hand now He knows just how to deal with you. Not a blow will be permitted to fall upon your shrinking soul but that the love of God permits it, and works out from its depths, blessing and spiritual enrichment unseen, and unthought of by you. --J. H. McC.
In one of George MacDonald's books occurs this fragment of conversation: "I wonder why God made me," said Mrs. Faber bitterly. "I'm sure I don't know what was the use of making me!"
"Perhaps not much yet," said Dorothy, "but then He hasn't done with you yet. He is making you now, and you are quarrelling with the process."
If men would but believe that they are in process of creation, and consent to be made--let the Maker handle them as the potter the clay, yielding themselves in resplendent motion and submissive, hopeful action with the turning of His wheel--they would ere long find themselves able to welcome every pressure of that hand on them, even when it was felt in pain; and sometimes not only to believe but to recognize the Divine end in view, the bringing of a son unto glory.
"Not a single shaft can hit,
Till the God of love sees fit."
Thursday, April 08, 2010
Friday, April 02, 2010
Author: Mrs. Charles E. Cowman
Source: Streams in the Desert
Scripture Reference: Exodus 16:20
Do Not Yield to Discouragement
"They looked...and behold, the glory of the Lord appeared in the cloud" (Exod. 16:10).
Get into the habit of looking for the silver lining of the cloud and when you have found it, continue to look at it, rather than at the leaden gray in the middle.
Do not yield to discouragement no matter how sorely pressed or beset you may be. A discouraged soul is helpless. He can neither resist the wiles of the enemy himself, while in this state, nor can he prevail in prayer for others.
Flee from every symptom of this deadly foe as you would flee from a viper. And be not slow in turning your back on it, unless you want to bite the dust in bitter defeat.
Search out God's promises and say aloud of each one: "This promise is mine." If you still experience a feeling of doubt and discouragement, pour out your heart to God and ask Him to rebuke the adversary who is so mercilessly nagging you.
The very instant you whole-heartedly turn away from every symptom of distrust and discouragement, the blessed Holy Spirit will quicken your faith and inbreathe Divine strength into your soul.
At first you may not be conscious of this, still as you resolutely and uncompromisingly "snub" every tendency toward doubt and depression that assails you, you will soon be made aware that the powers of darkness are falling back.
Oh, if our eyes could only behold the solid phalanx of strength, of power, that is ever behind every turning away from the hosts of darkness, God-ward, what scant heed would be given to the effort of the wily foe to distress, depress, discourage us!
All the marvelous attributes of the Godhead are on the side of the weakest believer, who in the name of Christ, and in simple, childlike trust, yields himself to God and turns to Him for help and guidance. --Selected
On a day in the autumn, I saw a prairie eagle mortally wounded by a rifle shot. His eye still gleamed like a circle of light. Then he slowly turned his head, and gave one more searching and longing look at the sky. He had often swept those starry spaces with his wonderful wings. The beautiful sky was the home of his heart. It was the eagle's domain. A thousand times he had exploited there his splendid strength. In those far away heights be had played with the lightnings, and raced with the winds, and now, so far away from home, the eagle lay dying, done to the death, because for once be forgot and flew too low. The soul is that eagle. This is not its home. It must not lose the skyward look. We must keep faith, we must keep hope, we must keep courage, we must keep Christ. We would better creep away from the battlefield at once if we are not going to be brave. There is no time for the soul to stampede. Keep the skyward look, my soul; keep the skyward look!
"Keep looking up--
The waves that roar around thy feet,
Jehovah-Jireh will defeat
When looking up.
"Keep looking up--
Though darkness seems to wrap thy soul;
The Light of Light shall fill thy soul
When looking up.
"Keep looking up--
When worn, distracted with the fight;
Your Captain gives you conquering might
When you look up."
We can never see the sun rise by looking into the west. --Japanese Proverb
Tuesday, March 23, 2010
Friday, March 19, 2010
A friend asked me recently what incredible things God was doing in my life. I wrote this in response and wanted to share it here in hopes that it might encourage some of you.
On my way home yesterday, I was thinking about how incredible it is when the Lord reveals to you your gifts and then he uses them to touch someone else. Even more incredible is how he uses the pain and trials in your life for good. I realized though that we have to choose to be where he wants us and not fight against it. A change of how we think and perceive the things happening in our lives is required to see those things as being part of his will.
Once my heart finally surrendered to the Lord completely it was like a flood of his presence has filled every part of me. Everything I read, everything I hear seems to point me back to the truth. Pastor Al’s sermon combined with a book I am reading reminded me that these things that are bringing so much pain into my life are not meant for evil. They are meant for good…good because they drive me to an intimate relationship with the Lord. Good because it has given me the opportunity to reach out to others who are suffering and point them to the Lord in it. Good because they are producing something of such greater value than a life void of pain. Seeing all of this in light of how God is going to use it and is using it has increased my trust in Him and his ability to work it all out according to HIS purpose. I am learning that being at rest in his will comes from trusting his purpose and not having to work it out according to what I think he should do with it.
I guess I kind of feel like he has softened me into pliable clay. I have never felt so intimate with the Lord as I do right now. That is exciting to me because for years I have looked back to my teenage years and considered that to have been my strongest time spiritually. Not so good to be walking with the Lord for so long and to have lost that freshness in our relationship. It saddened me but not enough to stop fighting against Him and for my own way. I finally feel as though I can hear him again as he speaks truth in my heart. I can trust him with my heart. I can obey without fear. I can hear his correction and respond with surrender and not a “failure response” of giving up and running to sin rather than away from it. As a result, my heart finally feels again. It has been stone for a very long time.
The Lord truly is becoming everything to me. In the past year, he has stripped away everything I was replacing him with. He is taking away the walls that I have been hiding behind. He gave me these certain friends who have challenged me in so many ways to find and cling to truth. He took my need to be pleasing to people and used that same need to face some things I really need to deal with and not run. In the process, its becoming more important to me what God thinks than what people think. I am not totally to that point of being free from my desire for approval but I think the Lord is loosening the fear that need had imprisoned my heart in. He took my greatest fear, brought it into my life, and then walked step by step through it, teaching my heart to seek approval in him and desire to hear his words alone, and then gave me what I needed in his way. So much healing took place in such a short amount of time and in a few powerful words. He is the very thing I thought I needed others to be.
I never thought the Lord would ever choose to use me again. I have failed horribly. I have willingly chosen to sin in horrible ways- like a rebellious child determined to crush her Father’s heart. I have dared God to leave me and walk away. I have tried, like I have done in many relationships, to convince him he shouldn’t waste his time. And true to who he is, he has waited for me to surrender and has patiently and passionately pursued my heart. Now he has allowed my heart to feel the freedom and healing power of his forgiveness. One day in the past couple of weeks, my mind was flooded with images of so many of the times I chose to sin. Each time the thought would come to mind, the Lord was there reminding me that it was paid for. It was incredible to me how many of the songs I heard that day had to do with the past and forgiveness.
So I am amazed and humbled that the Lord has given me the opportunity to be used again. It is bringing me so much joy. So much so that I never want to settle for less than God’s best again. I have been praying and asking him to allow me to have a women’s group again to lead, to serve, and to love. I am amazed now that he has brought these women together and it is more than I ever thought possible. I love it when the Lord allows me the opportunity to pour his love and truth into another person and getting to watch them grow. I have gotten to experience what happens when the Lord reveals things to us that have affected us and can be used as an excuse to justify our behavior. As I am learning to let go of those things and not let them be an excuse for me, I get to share with others how to do that too. Each time he gives me the opportunity to share with someone else, help someone else or serve someone I am overcome by joy. It makes everything else worth it to see God using it to bring someone else closer to him.
What are the incredible things he is doing? He is giving me a soft heart. He has replaced my mourning with gladness. He has brought me to the edge, allowed me to see the possibilities of things I could lose and asked me whether I will still choose Him. He has given me a steadfast faith that says “No matter what happens, I will follow you.” He has spoken his words of love, worth, and truth into my heart and has given me faith to believe him and cling those words. If you had known me these past ten years and seen the icy wall around my heart, the desire to be free yet feeling like I am always drowning never able to reach the surface, heard the lies that have waged war against my mind and heart, and felt the intensity of the fear that has imprisoned me you would agree that the things the Lord is doing is incredible. In finally surrendering to His love and allowing him to be everything I need, I feel like I can face the future, with whatever it might hold, with courage, security, and peace.
Monday, March 15, 2010
Author: Mrs. Charles E. Cowman
Source: Streams in the Desert
Scripture Reference: Revelation 15:3
Songs of Praise Rise From Affliction
"Just and true are thy ways, thou King of saints" (Rev. 15:3).
The following incident is related by Mrs. Charles Spurgeon, who was a great sufferer for more than a quarter of a century:
"At the close of a dark and gloomy day, I lay resting on my couch as the deeper night drew on; and though all was bright within my cozy room, some of the external darkness seemed to have entered into my soul and obscured its spiritual vision. Vainly I tried to see the Hand which I knew held mine, and guided my fog-enveloped feet along a steep and slippery path of suffering. In sorrow of heart I asked,
"'Why does my Lord thus deal with His child? Why does He so often send sharp and bitter pain to visit me? Why does He permit lingering weakness to hinder the sweet service I long to render to His poor servants?'
"These fretful questions were quickly answered, and through a strange language; no interpreter was needed save the conscious whisper of my heart.
"For a while silence reigned in the little room, broken only by the crackling of the oak log burning in the fireplace. Suddenly I heard a sweet, soft sound, a little, clear, musical note, like the tender trill of a robin beneath my window.
"'What can it be? surely no bird can be singing out there at this time of the year and night.'
"Again came the faint, plaintive notes, so sweet, so melodious, yet mysterious enough to provoke our wonder. My friend exclaimed,
"'It comes from the log on the fire!' The fire was letting loose the imprisoned music from the old oak's inmost heart!
"Perchance he had garnered up this song in the days when all was well with him, when birds twittered merrily on his branches, and the soft sunlight flecked his tender leaves with gold. But he had grown old since then, and hardened; ring after ring of knotty growth had sealed up the long-forgotten melody, until the fierce tongues of the flames came to consume his callousness, and the vehement heart of the fire wrung from him at once a song and a sacrifice. 'Ah,' thought I, 'when the fire of affliction draws songs of praise from us, then indeed we are purified, and our God is glorified!'
"Perhaps some of us are like this old oak log, cold, hard, insensible; we should give forth no melodious sounds, were it not for the fire which kindles around us, and releases notes of trust in Him, and cheerful compliance with His will.
"'As I mused the fire burned,' and my soul found sweet comfort in the parable so strangely set forth before me.
"Singing in the fire! Yes, God helping us, if that is the only way to get harmony out of these hard apathetic hearts, let the furnace be heated seven times hotter than before."
Tuesday, March 09, 2010
Monday, March 08, 2010
How majestic are your whispers, O Lord. The words of the song rolled off my tongue and I couldn’t help but smile. I knew a little something about the whispers of the Almighty God. Standing in the midst of other worshipers as we declared the truth of the Lord, made the words of this song feel like I was on the inside of an inside joke. An intimate exchange between me and the Lover of my Soul could be described in the majesty of the whisper of God. The sovereignty of God, ordering these particular worship songs to be sung on this very day, was nothing less than a continuation of this exchange.
The details of the encounter from the night before flooded my mind and melted my heart. Healing words had washed over my broken spirit. Words from man joined the words of God. Both working hand in hand to restore the assurance I so desperately needed. Only the Lord could have known the words I needed spoken over the ache in my heart. He alone knew the cry of my heart. He had seen the struggle. He knew how much I was doubting my worth and place in this world. He knew how unloved I felt. He knew the battle that was daily raging in my mind as I fought against insecurity and accusations.
So he whispered.
He whispered his truth.
I love you.
You can do this.
Be brave.
I have given you strength.
I am so proud of you.
You are my treasured possession.
I have chosen you.
Look in my eyes and see how I see you.
Sunday, March 07, 2010
Author: Mrs. Charles E. Cowman
Source: Streams in the Desert
Scripture Reference: 2 Corinthians 7:5
Our Dependency on Christ
"We are troubled on every side" (2 Cor. 7:5).
Why should God have to lead us thus, and allow the pressure to be so hard and constant? Well, in the first place, it shows His all-sufficient strength and grace much better than if we were exempt from pressure and trial. "The treasure is in earthen vessels, that the excellency of the power may be of God, and not of us."
It makes us more conscious of our dependence upon Him. God is constantly trying to teach us our dependence, and to hold us absolutely in His hand and hanging upon His care.
This was the place where Jesus Himself stood and where He wants us to stand, not with self-constituted strength, but with a hand ever leaning upon His, and a trust that dare not take one step alone. It teaches us trust.
There is no way of learning faith except by trial. It is God's school of faith, and it is far better for us to learn to trust God than to enjoy life.
The lesson of faith once learned, is an everlasting acquisition and an eternal fortune made; and without trust even riches will leave us poor. --Days of Heaven upon Earth
"Why must I weep when others sing?
'To test the deeps of suffering.'
Why must I work while others rest?
'To spend my strength at God's request.'
Why must I lose while others gain?
'To understand defeat's sharp pain.'
Why must this lot of life be mine
When that which fairer seems is thine?
'Because God knows what plans for me
Shall blossom in eternity.'"
Thursday, March 04, 2010
Im longing for You now
To meet me in my weakness
And heal me with Your power
I wanna see You
Open up my eyes
I wanna see You tonight
Jesus, I am ready
To leave the past behind
But Im still hesitating
Oh, to let go in my mind
Im fighting with confusion
And Im drowning in my sin
I thought I knew the answers
But Im left unsatisfied within
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