I took Jonathan to an appointment today with an Immunologist in Denver. This doctor was recommended by a family that our new pediatrician has taken care of for years. He has been instrumental in providing the children in that family a life with tremondous relief from chronic sinus infections. I was so pleased with this doctor.
We repeated allergy testing just to see if there was any chance that there were allergies that could be aggravating his situation. The good news that he no longer test positive to any of the allergies ( those must have been some good allergy shots that Dr. P made him in Knoxville!). The next step is to begin the process of testing his immune system. Dr. Voltz believes that he definietly has some thing going on with his immune system. Most of his immune type labs have not been repeated since 2005. The doctor was kind of shocked by this. I am not shocked at all...for the past several years I have just been put off and told to deal with it.
Dealing with it just doesn't work...not when your child is so sick and then becomes so psychiatrically unstable that he is begging you for a knife so he can cut his nose off. Or when the infection has lasted so long that he is not able to hold his head straight, walk steadily or speak without slurring his speech. Its so easy to say "I don't know" or "It's just how it is" when you don't have to live with him or watch him struggle twenty four hours a day!
So...we are drawing blood tomorrow for 17 different labs...ranging from basic CBC and CMP levels to vitamin levels and all the immunology levels. These labs will take about two to three weeks to get back. I am anxious to see what they say. I am hopeful that they will give us new insight on what to do to help Jonathan feel better. Thank you for praying for us so faithfully.