Thursday, January 31, 2008
We had an extremely long day and finally made it out of the hospital and home at 7:30 tonight. I will share more details tomorrow but for tonight will you just pray that Jon will have pain free night? Thank you.
I could really feel your prayers and the presence of GOd last night. I became violently ill with a migraine around 11pm. By the time Shawn got to the hospital with medicine and they got everything squared away with Jon so I could leave I was throwing up, dizzy, and shaky. I was quite scared to drive. I could feel God's protection around me and the baby all the way home and had pain relief in my sleep without any more medication. So thank you friends for being faithful to pray.
I am on my way back to the hospital now. We will learn what to do with this tube and do his chemo. If his labs are good and eveything else is ok then we will be back home in a few hours.
Tuesday, January 29, 2008
Jonathan needs your prayers tomorrow morning! We got the approval from all the drs involved so tomorrow morning Jon will have a peg tube placed in his stomach. He is very excited...I am a little nervous. I hope we are making the right choice. I am so ready for some relief from the stress of pill taking that I am willing to try anything!
His surgery is scheduled for 10:30. It is a minor and quick procedure but they will keep him overnight for observation. Please pray for his body temp to be stable throughout the procedure and for there not to be any complications. If he is doing well afterwards then on Thursday morning they will give him his chemo before we leave for home.
I am so thankful for some friends of my children who's parents have allowed them to stay with them after school and spend the night. It is such a blessing to know my husband will be able to join us at the hospital in the evening and stay with us and not have to worry about the other kids!
Mya has her consultation at 3pm tomorrow so my grandma is going to sit with Jon while I run her over there. I am praying they can quickly schedule her ear tube surgery as well. The quicker the better for all of us!!!!
Thank you for your prayers and your friendship! (The pic is of Jon and his best friend Noah)
Friday, January 25, 2008
Wednesday, January 23, 2008
The night has ended and now dawn is arriving. I can see her on the horizon peeking through the black stillness with brilliant rays of light. The heart leaps with new found hope at the sight. A sight so reving for a well wearied soul to behold.
Eyes heavy with sorrow lift to gaze upon the sight, a stray tear falls and disappears in the sonlight. The days have been dark, silent, not an answer to shatter the stillness. My heart has clung to words heard before- this too will pass.
How the sky must be so dark for the picture to be so bright. The beauty must not be lost among light soft whisps of cloud-only the deep darkness portrays the color in bold display. So, an eye without a tear, never sees the rainbow. Gold without fire will never shine pure. Clay without heat will never be firm. A soul without wind will never learn to find refuge.
One who doesn't learn to walk in the dark trusting will never follow in the light. Here in the dark, I feel my masters hand. Its here that I feel his tight grip, his arms embracing me. Without rocks to stumble over, I'd never know what it was to have Him pick me up.
And this weary soul would never know rest, if it were always dawn. In the dark silence, I hear a voice, " Come..."
The other man I must brag on is my dad. I don't really tell him enough how much I appreciate him. My mom an dad both gave up the entire weekend and then some to come here and help us with whatever needed done. My dad came after working all day and spent 5 hours laying this beautiful new kitchen floor that Mya is sitting on in the picture! I was amazed and reminded again of the beauty of truth when my parents jumped right in to help meet the need.
So here is just a sampling of everything we accomplished this weekend- the entire hallway and stairwell have new paint, the trim in the whole upstairs is a bright clean white, there are 8 brand new 6 panel doors up that have brought my house into the modern era, the bathtub is sporting new grout, the kitchen cabinets have been scrubbed and all the handles replaced, and a new kitchen floor has been laid. The floor is so wonderful...it is actually some sort of vinyl that locks together like hard wood and actually looks like hardwood. The appraiser actually thought it was real wood!!! I feel spoiled and blessed. I am thankful I get to enjoy it just enough for it not to be destroyed by little hands, Jon's numerous craft projects and that inevitable irreversible stain!
The first appraisal was this morning. The second one is tomorrow along with the market analysis. Then we wait and pray. Please pray that God will provide exactly the right offer. He knows our need and the desire of our hearts. I know he is bigger than the economy and housing market.
In other news, Jon has chemo tomorrow. I am praying that they will not keep him for fluid. I have tried hard to keep him hydrated but he is feeling so bad that it has been difficult. It is such a difficult balance. I am hoping to get a definitive answer tomorrow about the gtube and an appt for it. We also have a little bit of a stomach bug going through right now- pray that Jon will not get it.
Saturday, January 19, 2008
Wednesday, January 09, 2008
This is a bad picture but I felt I had to put some kind of Colorado picture in here... this is from last summer when we went out to visit. We had gone to the park with my in laws.
Its hard to believe I am moving back to where it snows. Its hard to believe I am willingly going. Its hard to believe this is happening so fast. We are still waiting for our relo packet. Once that arrives it will be crazy. One of Shawn's friends estimated we would have our appraisal within a week... that means there is a massive amount of things to be done! I am thinking that if I can do a whirlwind of work between now and then the next 8 weeks will be easy- there will be very little to clean up if it is all packed, right?
We took what may be our last trip to Atlanta this morning. Thankfully we left at 4:30. The traffic was awful once we got to the outskirts of town. We made it just in time. Today Jon, Britt, and Josh went to the neurologist. Josh is going to be taking a preventative for the migraines. We are going to try Topamax daily and see if it helps calm things down a little. I hate for him to experience such severe pain so hopefully it will work. The trip down and back and the appt went well. Only one major crisis- Jon decided to choke on his lunch and throw up all over himself, the table and the floor. Needless to say every one's appetite was spoiled and we got the rest of lunch to go. After a pit stop to Target for new clothes we were on our way!
Tomorrow is chemo day...pray that I can convince the drs that he needs this tube in his stomach to help him. I need to get it done before we move. This would be so wonderful for Jon and the rest of us.
Tuesday, January 08, 2008
We are Colorado Bound. Shawn accepted the offer Saturday to relocate to Colorado Springs. This is an incredibly huge change for our whole family...good and bad, happy and sad. It will definitely be an adventure. We are scheduled to move the first week of April...Shawn begins work on April 7. So let the craziness begin...or continue...or whatever....
It will be a whirlwind of activity in our home for the next 10 weeks...its hard to believe we will begin a new life in just that short amount of time. Please pray for all the details, transitions, and emotions. I will keep you all posted.
Saturday, January 05, 2008
We are home from Atlanta and everything is good. There are no significant changes in Jon's tumor. He definately still has a massive sinus infection. I am going to try to get in touch with the ENT and see if there is anything different we can do for him... his next appt is not until Feb. But he is so miserable.
I was so happy following the appt with the oncologist today...we discussed the problem we have with his meds. I am at a point of desperation with his pill taking. It takes at least an hour and a half each night to get the pills down. For the first time today someone had a solution that might really work-either a NG tube or NJ tube... of course, there is no way he would tolerate a tube in his nose. But a tube in his stomach would be a real possibilty. The thought of not having to force pills down his throat is very appealing to me. So Thursday morning I will be heading to clinic ready to push for this happening very soon. God knows we needed an answer for this quickly.
Well, I better get to bed. There is more to update about soon but for now my pillow is calling my name!
Thursday, January 03, 2008
Overall this has been a good trip...we spent the day at the North Point Mall yesterday. Brittney was ecstatic to be able to go to the new American Girl store. It was quite the place. Mya was not too happy about seeing her bitty baby on the shelf. She kept trying to get it off and into her arms. Everyone is now the proud owner of their very own webkinz...Brittney got one for her birthday and the boys really wanted one. Jon got one as a gift at the hospital yesterday so they just had to have one.
Mya has been so sick... thankfully the ibuprofen seems to be helping. I think she probably needs ear tubes... honestly, even though it is just a minor surgery I just don't want to deal with another thing. Today she spent the day with me at the psychology office...she was disgustingly funny... her nose is so stuffy and runny that when she sucks her thumb she sounds awful. She started sucking her thumb to purposely make the nasty sound and then laughed about it.
I could really use your prayers... I am struggling with so many emotions that I can't think straight. I feel as though I am sliding into the depths of despair.... I don't want to go into detail tonight...just don't have the emotional energy but please just pray...God knows what I need... he seems to be engaged in the battle for my heart!
I will post again tomorrow when we know the results of Jon's scan.
Tuesday, January 01, 2008
I will update as soon as I can. Thanks for your prayers. Pray also for everyone to get well...Mya has had a fever the past 2 days and a yucky cough...this sickness has to end soon.I am not sure how much more I can deal with.